Ehlers-Danlos syndrome (EDS): hypermobility, stretchy skin
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Ehlers-Danlos syndrome or Ehlers-Danlos syndrome (EDS) is the name for a group of hereditary connective tissue disorders. The connective tissue is less firm, joints are more mobile (hypermobility) and can dislocate more quickly. The muscles may be weak, someone with EDS is more prone to bruising, the skin is hyper-elastic (stretchy) and feels like velvet. Certain types of EDS can rupture blood vessels and organs, leading to bleeding in the body. EDS affects about one in five thousand people.
Content article
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Ehlers-Danlos syndrome (EDS) and how does the syndrome get its name? Connective tissue Different names for the syndrome How often and in whom does EDS occur? Cause EDS Is EDS Hereditary? Symptoms EDS What might you notice from a child with EDS? The different types of Ehlers-Danlos syndrome Diagnosis EDS Treatment EDS Precepts Possible complications EDS Prognosis, the course EDS
Different names for the syndrome
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Ehlers-Danlos syndrome Ehlers-Danlos syndrome Ehlers-Danlos syndrome EDS
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11 minMain dishpeanut oil, tofu stir-fry cubes finely seasoned, stir fry sauce sweet and sour, thick noodles, carrot julienne, beetroot julienne, yellow bell pepper, watercress,rainbow salad with tofu -
45 minMain dishRed cabbage, mild olive oil, quinoa plus, forest outing, lemon, sesame oil, soy sauce less salt, Bio Today tahini white in pot, tap water,grilled red cabbage with quinoa salad -
30 minDessertBrie, Roquefort, port salut, gruyere, Camembert, walnut, garlic, thyme, honey, grape, baguette, Red onion, red grape, raisins, Red wine, Red wine vinegar, Brown sugar,generous cheese plate with onion marmalade -
30 minDessertFull Milk, whipped cream, macaroon, custard powder, vanilla sugar, sugar, protein, amaretto, almond liqueur, basic recipe cooking pears,macaroon pastry with casserole
Diagnosis EDS
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If the GP suspects EDS, it is good to ask for a referral to a clinical geneticist
Precepts
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Try to avoid injuries: no sharp objects in the house, no contact sports. Wear knee socks and shin guards underneath if necessary. If you smoke, quit smoking. Discuss with the physiotherapist what exercises you should do at home. Maybe orthopedic shoes. If you know you have EDS, always report it to a doctor. An assessment can then be made as to whether an operation, examination or action is really necessary. Always report it when medication is prescribed.
Possible complications EDS
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Due to hypermobility, instability can occur. Also due to hypermobility: osteoarthritis, osteoporosis. Skeletal abnormalities may develop: scoliosis, kyphosis. As for the feet: pes equinovarus (club foot), pes planus (flat foot), hallux valgus (deviation of the big toe). Aneurysm: a widening in part of the vasculature (especially in the vascular type). Cardiological complications: cardiac arrhythmias, mitral valve prolapse. Surgical complications can arise. Respiratory (breathing) complications. Chronic pain and chronic fatigue can be complications. Problems during pregnancy. Eye problems. Dental problems.
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5 minDrink without alcoholbananas, cool fresh apple-pear raspberry juice, Soy drink vanilla,soy fruit shake -
20 minMain dishsauerkraut, sticking potato, liquid baking product, half-to-half minced, Spice meatballs, pineapple, olive oil, liquid baking product,gratin sauerkraut dish with minced meat -
40 minMain dishlemongrass, fresh ginger, Red peppers, onions, tomato cubes, fresh cod fillet, coriander, oil, ground turmeric (koenjit), coconut milk, salt,fish in creamy coconut sauce -
15 minSide dishsweet potato, soft goat cheese, egg, spring / forest onion,stuffed sweet potato with egg
Prognosis, the course EDS
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The course is unpredictable, but usually the symptoms increase slowly. Life expectancy does not differ from people who do not suffer from EDS. This is somewhat different for the vessel type, the danger lies in rupture (tearing) of arteries. Good guidance for persons with EDS is important.
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The course is unpredictable, but usually the symptoms increase slowly. Life expectancy does not differ from people who do not suffer from EDS. This is somewhat different for the vascular type, the danger lies in rupture (tearing) of arteries. Good guidance for persons with EDS is important.